Please ensure Javascript is enabled for purposes of website accessibility Ikwu Isi ọdịnaya
En Español
A A
800-511-5010
Health First Colorado na CHP + na-alaghachi na usoro mmeghari ohuru.
Lelee email gị, ozi na igbe mbata PEAK. Mee ihe mgbe ị nwetara ozi gọọmentị. Ị nwere ike ịhụ ụbọchị mmeghari gị Ebe a n'oge ọ bụla. Ọ bụrụ na ị nweta ngwugwu mmeghari ohuru, gbaa mbọ dejupụta ya. Gbaa mbọ hụ na ị bịanyekwara aka na ya wee weghachi ya ka ụbọchị ruru.
Mụtakwuo ebe a

Ọnwa Mmata Sickle Cell

By Wivine N

Mgbe a gwara m ka m dee blọọgụ na ọrịa sickle cell (SCD) maka ọnwa ịmara Sickle Cell, enwere m obi ụtọ na karịa ọnwa. N'ikpeazụ - a na-arịọ ka m dee na isiokwu nwere ike were ohere kachasị n'ime obi m. Ma n’eziokwu, o were m ogologo oge ka m nọdụ ala chebaara akwụkwọ echiche. Olee otú m ga-esi gosi mmetụta uche ndị na-abịa site n’ikiri ka a na-ajụ onye m hụrụ n’anya n’ọnụ ụzọ ụlọ ọgwụ mgbe a na-eji echiche na-emezigharị ihe na-edobe ákwá nke nhụjuanya nkịtị? Ebee ka otu na-amalite mgbe ha chọrọ ịkụziri a generalized ndị na-ege ntị banyere ọzọ n'ezie na-egbu mgbu ihe na akara aka na-alụ ụfọdụ n'ime anyị na-ege ntị nke ọtụtụ ga-abụ na ọ dịghị mgbe ịhụ ma ọ bụ na-eche mmetụta ya n'azụ onye agbata obi mechiri emechi ụzọ. Kedu ka m ga-esi kwupụta ahụhụ nne na-ata? Ogbe ogbe nke nwere otu nwata ka o na-azụlite? Ọ bụ naanị site na ogologo ọrụ ederede site na nkuzi Master of Public Health ebe ohere dị iji kọwaa etu omume na omume adịghị mma nke ndị na-enye ndị ọrịa nwere SCD, mkparị nke omume ịchọ nlekọta ndị ọrịa, na ejighị n'aka na otu esi emeso ndị ojii. / Ndị ọrịa Africa America na-eduga n'ụlọ ọgwụ mgbe niile ma ọ bụ nnukwu mkpesa nke mgbaàmà? Kedu nke na-eduga n'ịbawanye ihe egwu, ugboro ole, na oke nsogbu SCD? Kedu nke nwere ike iduga ụdị ihe ngosi ndụ niile, gụnyere ọnwụ?

Rambling na-eche echiche n'olu dara ụda ugbu a.

Ma, ma eleghị anya, m nwere ike igosi nyocha m na gburugburu mgbe m nwetara ma nyochaa ndekọ ndekọ ahụike nke ndị mmadụ na-arịa ọrịa sickle cell na Colorado iji chọpụta ma iji nchịkwa ketamine dị irè na-ebelata oke opioid doses na-achọkarị / rịọ na nnukwu nsogbu mgbu sickle cell. . Ma ọ bụ afọ m na ụlọ nyocha, na-emepụta polypeptides sịntetik dị ka ụzọ mgbochi ọrịa nke ga-eme ka njikọ ọbara dị maka oxygen dịkwuo elu. Adị m eche maka ide na ọtụtụ eziokwu ndị ọzọ m mụtara na ọmụmụ MPH m, dịka etu ndị dọkịta na-ahụ maka ọgwụ ezinụlọ si enwekarị ahụ iru ala na njikwa SCD, n'otu akụkụ n'ihi inwe mmekọrịta n'etiti ndị Africa America.1 - ma ọ bụ otu akụkụ akụkụ na-atọ ụtọ, ntụle ntụnyere nke National Hospital Ambulatory Medical Care Survey n'etiti 2003 na 2008 gosiri na ndị ọrịa Africa America nwere SCD nwetara oge nchere nke dị 25% ogologo karịa Nlele Nlebaanya Ndị Ọrịa General.2

Otu eziokwu sickle cell amaara m na m hụrụ n'anya ikekọrịta bụ - enweghị ego maka sickle cell ma e jiri ya tụnyere ọrịa ndị ọzọ ama ama. A kọwara nke a n'otu akụkụ site na nnukwu ọdịiche dị na nzuzo na ego ọha na eze maka nyocha ụlọ ọgwụ n'etiti ọrịa na-emetụta ndị isi ojii na ndị ọcha na mba anyị.3 Dịka ọmụmaatụ, cystic fibrosis (CF) bụ ọrịa mkpụrụ ndụ ihe nketa na-emetụta ihe dị ka mmadụ 30,000, ma e jiri ya tụnyere 100,000 nke SCD metụtara.4 Site n'echiche dị iche, 90% nke ndị mmadụ na CF bi na-acha ọcha ebe 98% nke ndị nwere SCD bụ ndị ojii.3 Dị ka SCD, CF bụ isi ihe na-akpata ọrịa na-anwụ anwụ, na-akawanye njọ na afọ, na-achọ usoro ọgwụ siri ike, na-ebute ụlọ ọgwụ na-adịte aka, ma na-ebelata ogologo ndụ.5 Na agbanyeghị myirịta ndị a, enwere nnukwu ọdịiche dị na nkwado ego n'etiti ọrịa abụọ a, ebe CF na-anata okpukpu anọ ego ego gọọmentị sitere na National Institutes of Health ($ 254 nde) ma e jiri ya tụnyere SCD ($ 66 nde).4,6

Oke oke. Ka m laghachi azụ wee soro nne m bido.

Nne m bụ onye Africa kwabatara na Democratic Republic of Congo onye ji afọ iri abụọ na abụọ mbụ nke ndụ ya na Normal, Illinois ịkwa ntutu isi. Ihe ịchọ mma ya nke etiti-Africa, yana usoro mkpịsị aka ya dị mgbagwoju anya na anya maka izu oke, mere ka ọ bụrụ onye a ma ama na-aga ntutu isi maka ndị obodo Africa America na mpaghara Bloomington-Normal ruo ọtụtụ afọ. Otu nnọkọ na-ewekarị ọtụtụ awa n'otu oge ma nne m na-asụ obere Bekee. Ya mere, ọ na-ekere òkè na-ege ntị ka ndị ahịa ya na-akọrọ akụkọ banyere ndụ ha na nke ụmụ ha. Isiokwu na-emegharị ugboro ugboro nke na-adọrọ mmasị m mgbe m nọdụrụ ala n'akụkụ agba agba ma ọ bụ na-eme ihe omume ụlọ m bụ enweghị ntụkwasị obi n'ozuzu na enweghị mmasị maka Advocate BroMenn Medical Center, ụlọ ọgwụ kacha ukwuu na mpaghara Bloomington-Normal. Ụlọ ọgwụ a dị ka ọ nwere onye nnọchi anya na-adịghị mma na mpaghara ndị America America maka ihe a ga-akọwa n'ụzọ nkịtị dị ka ndị na-eweta mkparị na-enweghị isi na nlekọta na-enweghị isi na omenala. Mana, ndị ahịa nne m na-akpachapụ anya na akaụntụ ha wee kpọọ ya maka ihe ọ bụ - ịkpa ókè agbụrụ. Dị ka ọ tụgharịrị, ịkpa ókè agbụrụ bụ nanị otu n'ime ọtụtụ ihe nlekọta ahụike na-emepụta echiche ndị a; ndị ọzọ gụnyere nleghara anya, ele mmadụ anya n'ihu, na ajọ mbunobi.

Nleghara anya mere ka nwanne m nwanyị nọrọ n'isi abalị iri mgbe ọ dị afọ 10. Ajọ ajọ mbunobi na enweghị nkwanye ùgwù mere ka ọ hapụ ịga akwụkwọ ihe fọrọ nke nta ka ọ bụrụ afọ abụọ ka ọ na-erule ngwụsị ụlọ akwụkwọ sekọndrị. Eleghị anya (na n'ụzọ siri ike, enweghị ikike nke ndị na-ahụ maka ahụike) butere otu ọrịa strok site na afọ 8 na nke ọzọ na-emetụta akụkụ nke ọzọ mgbe ọ dị afọ 21. Na ịkpa ókè agbụrụ na-egbochi ya ịnweta ọgwụgwọ kachasị site na ọrịa a ọ chọrọ ma chọọ. .

Ruo ugbu a, ọtụtụ nde okwu m debere n'akwụkwọ gbasara ihe ọ bụla metụtara sickle cell na-etolite mgbe niile gbasara ọrịa, mwute, ịkpa ókè agbụrụ, ọgwụgwọ na-adịghị mma, na ọnwụ. Mana ihe kacha amasị m gbasara oge nke blọọgụ a - gbasara ọ bụ ọnwa ịmara Sickle Cell n'afọ 2022 - bụ na emechara m nwee ihe magburu onwe ya ide banyere ya. Ruo ọtụtụ afọ, esogoro m ndị isi ọgwụgwọ na nyocha sickle cell. Agala m ka m mụta ihe site na nke kacha mma, chepụta ntọala ọmụma nke ụzọ m ga-esi kwado ọgwụgwọ nwanne m nwanyị ma weghachite ya n'ụlọ. Na 2018, m hapụrụ Colorado ka m biri nso nwanne m nwanyị na Illinois. Ahụrụ m ndị isi nyocha nke otu Hematology & Stem Cell Transplant otu na Mahadum Illinois dị na Chicago's Hematology/Oncology Department - otu ndị isi ahụ jụrụ arịrịọ nne m - ka ha nweta ohere anyị. N'ime afọ 2019, mụ na onye na-ahụ maka nọọsụ na-edu ndú (NP) na-arụkọ ọrụ iji nyere aka hụ na nwanne m nwanyị gara nhọpụta ya nde na otu nke ga-atụle ike ya iji nweta ntụgharị. N'afọ 2020, enwetara m oku ekwentị site n'aka NP onye ji anya mmiri obi ụtọ jụọ ma achọrọ m ịbụ onye na-enye onyinye ekwentị nwanne m nwanyị. Nakwa na 2020, enyenyere m mkpụrụ ndụ sel m, ihe m na-enweghị ike ime ruo afọ ole na ole tupu mgbe ahụ n'ihi naanị otu egwuregwu ọkara, wee laghachi n'ugwu m hụrụ n'anya. Na 2021, otu afọ ka enyechara onyinye, ahụ ya anabatala mkpụrụ ndụ azumazu - nke bịara na akara stampụ ahụike. Taa, Amy nwere onwe ya pụọ ​​n'ọrịa sickle cell na ndụ ya dị ka o cheburu n'onwe ya. Maka oge mbụ.

Enwere m ekele na Colorado Access maka ohere ide banyere sickle cell na ọnọdụ dị mma - na nke mbụ. Maka ndị nwere mmasị, nweere onwe gị pịa njikọ dị n'okpuru ebe a ka ịnụ akụkọ nwanne m nwanyị na nne m, ozugbo site na isi mmalite.

https://youtu.be/xGcHE7EkzdQ

References

  1. Mainous AG III, Tanner RJ, Harle CA, Baker R, Shokar NK, Hulihan MM. Àgwà maka njikwa ọrịa Sickle cell na ihe mgbagwoju anya ya: Nnyocha mba nke ndị dibịa bekee ezinụlọ. 2015;853835:1-6 .
  2. Haywood C Jr, Tanabe P, Naik R, Beach MC, Lanzkron S. Mmetụta nke agbụrụ na ọrịa na Sickle Cell Patient echere oge na Ngalaba Mberede. M J Emerg Med. 2013;31(4):651-656.
  3. Gibson, GA Martin Center Sickle Cell Initiative. Ọrịa Sickle Cell: Ọdịiche Ahụike kacha. 2013. Dị na: http://www.themartincenter.org/docs/Sickle%20Cell%20Disease%20 The%20Ultimate%20Health%20Disparity_Published.pdf.
  4. Nelson SC, Hackman HW. Ihe gbasara agbụrụ: Echiche maka agbụrụ na ịkpa ókè agbụrụ n'ime ogige Sickle cell. Ọrịa Pediatr Ọrịa Ọbara. 2012; 1-4.
  5. Haywood C Jr, Tanabe P, Naik R, Beach MC, Lanzkron S. Mmetụta nke agbụrụ na ọrịa na Sickle Cell Patient echere oge na Ngalaba Mberede. M J Emerg Med. 2013;31(4):651-656.
  6. Brandow, AM & Panepinto, JA Hydroxyurea Jiri na Ọrịa Sickle Cell: Agha ahụ nwere ọnụ ọgụgụ dị ala nke ndenye ọgwụ, nnabata ndị ọrịa na-adịghị mma, yana egwu nke nsị na mmetụta dị n'akụkụ. Ọkachamara Rev Hematol. 2010;3(3):255-260.