Kuwala Kwambiri: Kudziwitsa Matenda a Parkinson
Pamene dzuŵa la m’maŵa likusefekera m’makataniwo, tsiku lina limayamba. Komabe, kwa omwe ali ndi matenda a Parkinson, ntchito zosavuta kwambiri zimatha kukhala zovuta, chifukwa kuyenda kulikonse kumafuna khama limodzi ndi kutsimikiza mtima kosasunthika. Kudzuka ku zenizeni za kuchepa kwa kuyenda ndi chikumbutso chomvetsa chisoni cha nkhondo za tsiku ndi tsiku zomwe ziri patsogolo. Kudzuka pabedi komwe kunali kovuta kale kumafunikira kugwira zinthu zapafupi kuti zithandizire, umboni wapang'onopang'ono wa matenda a Parkinson.
Ndi manja ogwedezeka ndi kusakhazikika bwino, ngakhale mwambo wam'mawa wophika khofi umasintha kwambiri. Fungo lotonthoza la khofi wophikidwa kumene limaphimbidwa ndi kukhumudwitsidwa kwa kutaya madzi ambiri pa kauntala kuposa m'kapu yodikirira. Atakhala pansi kuti amve kukoma koyambako, kutentha kofunda sikukwanira, zomwe zimapangitsa kubwerera kukhitchini kukawotcha khofi mu microwave. Gawo lirilonse limakhala ngati ntchito, koma chikhumbo cha mphindi ya kutentha ndi chitonthozo chimapita patsogolo, mosasamala kanthu za zopinga. Kulakalaka kutsagana ndi khofi kumabweretsa chisankho chowotcha chidutswa cha mkate. Zomwe kale zinali zachizoloŵezi tsopano zikuwonekera ngati zovuta zingapo, kuyambira polimbana ndi kuyika mkate mu chowotcha mpaka kulimbana ndi mpeni kuti kupaka batala pa kagawo kakang'ono. Kuyenda kulikonse kumayesa kuleza mtima ndi chipiriro, popeza kunjenjemera kumawopseza kufooketsa ngakhale ntchito zofunika kwambiri.
Mwambo wam'mawa uno ndizochitika zofala kwa anthu ambiri omwe ali ndi matenda a Parkinson, monganso agogo anga aamuna, a Carl Siberski, omwe adakumana ndi zovuta zamtunduwu. Kwa zaka zambiri, adafufuza zovuta zomwe matenda a Parkinson adakumana nawo, ndikuwunikira zovuta zatsiku ndi tsiku za omwe akukhudzidwa ndi vuto la minyewa lovutali. Ngakhale kufalikira kwake, padakalibe kumvetsetsa kozungulira matenda a Parkinson. Polemekeza ulendo wa Carl ndi ena osawerengeka omwe anakhudzidwa ndi matenda a Parkinson, April wasankhidwa kukhala Mwezi Wodziwitsa Matenda a Parkinson. Mwezi uno ndi wofunika kwambiri chifukwa umakhala mwezi wobadwa wa James Parkinson, yemwe adayamba kuzindikira zizindikiro za matenda a Parkinson zaka 200 zapitazo.
Kumvetsetsa Matenda a Parkinson
Ndiye, kodi matenda a Parkinson ndi chiyani kwenikweni? Matenda a Parkinson ndi matenda a ubongo omwe amakhudza kwambiri mbali iliyonse ya moyo wa munthu. Pakatikati pake, ndizochitika zomwe zimadziwika ndi kuchepa kwapang'onopang'ono kwa maselo amitsempha muubongo, makamaka omwe ali ndi udindo wopanga dopamine. Neurotransmitter iyi imagwira ntchito yofunika kwambiri pothandizira kusuntha kosalala, kogwirizana kwa minofu. Komabe, pamene milingo ya dopamine ikuchepa chifukwa cha kuwonongeka kwa maselo kapena imfa, zizindikiro za matenda a Parkinson zimapita patsogolo, kuyambira kunjenjemera, kuumitsa, ndi kusokonezeka kwa mgwirizano ndi mgwirizano.
Zizindikiro za Matenda a Parkinson
Zizindikiro zimasiyana munthu ndi munthu ndipo zimatha kuwonekera pang'onopang'ono pakapita nthawi. Kutengera ndi munthu, zingakhale zovuta kusiyanitsa ngati zizindikirozo zikukhudzana ndi matenda a Parkinson kapena kukalamba. Kwa Carl, kulimbana kwake ndi matenda a Parkinson kudadziwika ali wamkulu, zomwe zidapangitsa anthu omwe sanali pafupi naye kuganiza kuti kunali kulephera kwake kukhalabe ndi moyo. Komabe, kwa ambiri, kuphatikizapo banja lake, zinali zokhumudwitsa kuona moyo wake ukuchepa pang’onopang’ono.
Carl adadzipereka kwambiri pa moyo wake woyendayenda komanso kuchita masewera olimbitsa thupi. Atapuma pantchito, adayamba maulendo osiyanasiyana apadziko lonse lapansi ndipo adakhala wokonda kuyenda panyanja, atasangalala ndi maulendo apanyanja pafupifupi 40 m'moyo wake. Asanayambe ulendo wake, anakhala zaka zambiri akuphunzitsa giredi 4 akulera ana asanu ndi mmodzi ndi mkazi wake, Norita. Wodziwika chifukwa cha moyo wake wokangalika, Carl adatenga nawo gawo pamipikisano yambiri, kuthamanga tsiku lililonse, kugwiritsa ntchito mpata uliwonse kukwera, kusamalira dimba lalikulu kwambiri lapafupi, ndikupangitsa kuti ntchito zowongolera nyumba ziwoneke ngati zosavuta. Poyamba ankadziwika kuti ankakwera njinga, anasiya kuchita zimenezi chifukwa matenda a Parkinson anayamba kusokoneza kuyenda kwake. Zochita zimene poyamba zinkam'bweretsera chimwemwe chenicheni—monga kulima dimba, kupenta, kukwera maulendo, kuthamanga, ndi kuvina—zinakhala zokumbukira m’malo mwa zinthu za tsiku ndi tsiku.
Ngakhale kuti Carl ali ndi moyo wovuta, matenda a Parkinson ndi osasankha. Tsoka ilo, silingachiritsidwe kapena kupewedwa. Ngakhale kuti moyo wokangalika wa Carl unali wodziwika, sizinamupangitse kuti asatengeke ndi matendawa. Matenda a Parkinson angakhudze aliyense, mosasamala kanthu za momwe amachitira.
Zizindikiro zina za matenda a Parkinson ndi awa:
- Kunjenjemera: Kugwedezeka mosadziletsa, nthawi zambiri kumayambira m’manja kapena zala.
- Bradykinesia: Kuyenda pang'onopang'ono komanso zovuta kuyambitsa mayendedwe odzifunira.
- Kusasunthika kwa minofu: Kuuma kwa miyendo kapena thunthu kungayambitse kupweteka ndi kusokonezeka kwa kayendetsedwe kake.
- Kusakhazikika kwapambuyo: Kuvuta kusunga bwino, zomwe zimayambitsa kugwa pafupipafupi.
- Bradyphrenia: Kusokonezeka kwa chidziwitso monga kukumbukira kukumbukira, kuvutika kuika maganizo, ndi kusintha kwa maganizo.
- Kuvuta kulankhula ndi kumeza: Kusintha kwa kalankhulidwe ndi kumeza.
Kuvuta kulankhula ndi kumeza kunali zizindikiro zovuta kwambiri, zomwe zinakhudza kwambiri Carl. Kudya, chomwe ndi chimodzi mwa zinthu zosangalatsa kwambiri m’moyo, kumakhala magwero a chisoni pamene munthu sangakhutire mokwanira. Kuyankhula ndi kumeza zovuta kumabweretsa zovuta pankhondo yolimbana ndi matenda a Parkinson, kupanga zolepheretsa kulankhulana ndi chakudya choyenera. Carl anakhalabe tcheru ndipo ankakambirana m'zaka zake zomaliza koma ankavutika kufotokoza maganizo ake. Pachiyamiko chake chomaliza, banja lathu linakhala mozungulira tebulo, ndipo chiyembekezo chinakula m’maso mwa Carl pamene ankaloza mwachidwi ku hors d’oeuvres—kuchonderera mwakachetechete kuti ife tisangalale ndi zakudya zophikira zomwe sakanatha kuzimvanso.
Kulimbana ndi Matenda a Parkinson
Ngakhale matenda a Parkinson mosakayikira amakhudza moyo wabwino, samawonetsa kutha kwa moyo wokha. M’malo mwake, pamafunika kusintha kuti mupitirize kukhala ndi moyo mokwanira. Kwa Carl, kudalira njira yake yothandizira kunakhala kofunika kwambiri, ndipo anali ndi mwayi wokhala ndi malo akuluakulu m'dera lake komwe ankakonda kucheza ndi anzake. Chikhalidwe cha chikhalidwe chinali chofunikira kuti iye apite patsogolo, makamaka poganizira kuti abwenzi ake ambiri akukumana ndi mavuto ndi thanzi lawo, kuwalola kuti azithandizana wina ndi mzake kudzera muzochitika zomwe adakumana nazo.
Kuwonjezera pa malo ake ochezera a pa Intaneti, Carl anapeza chitonthozo m'chikhulupiriro chake. Monga Mkatolika wodzipereka, kupita ku misa tsiku ndi tsiku ku tchalitchi cha St. Rita kunam’patsa mphamvu zauzimu. Ngakhale kuti zokonda zakuthupi zinafunika kuleka, kupita kutchalitchi kunalibe chizolowezi chake. Ubale wake ndi wansembe wa tchalitchicho unakula, makamaka m’zaka zake zomalizira, pamene wansembeyo ankapereka chitsogozo chauzimu, kupereka Sakramenti la Kudzoza kwa Odwala ndi kutsogolera misa ya maliro a Carl. Mphamvu ya pemphero ndi chipembedzo zidakhala ngati njira yayikulu yothanirana ndi Carl ndipo zingathandizenso ena omwe akukumana ndi zovuta zomwezi.
Kupitilira chikhulupiriro, chithandizo chabanja chidathandizira kwambiri paulendo wa Carl. Monga bambo wa ana asanu ndi limodzi komanso agogo azaka khumi ndi zisanu ndi zitatu, Carl adadalira banja lake kuti limuthandize, makamaka pankhani zakuyenda. Ngakhale kuti maubwenzi anali ofunikira, chithandizo cha banja chinali chofunika kwambiri, makamaka pokonzekera chisamaliro chakumapeto kwa moyo ndi zisankho.
Kupeza akatswiri azaumoyo kunalinso kofunikira. Katswiri wawo adatsogolera Carl ku zovuta za matenda a Parkinson. Izi zikugogomezera kufunikira kwa chithandizo chamankhwala, monga Medicare, chomwe chimathandiza kuchepetsa mavuto azachuma omwe amakhudzana ndi chithandizo chamankhwala. Izi ndizofunikira makamaka kwa mamembala a Colorado Access, omwe angakhale akukumana ndi zochitika zofanana, ndikuyika chifukwa chake kuli kofunika kuti tipitirize kupereka Medicaid.
Kuphatikiza pa zipilala zothandizira izi, njira zina zothanirana nazo zingathandize anthu omwe ali ndi matenda a Parkinson, kuphatikiza:
- Maphunziro: Kumvetsetsa matendawa ndi zizindikiro zake kumapatsa mphamvu anthu kuti azitha kusankha bwino pazamankhwala awo komanso kusintha kwa moyo wawo.
- Khalani otakataka (ngati kuli kotheka): Chitani masewera olimbitsa thupi mogwirizana ndi luso ndi zomwe mumakonda, chifukwa kuchita masewera olimbitsa thupi kungathandize kusuntha, kusinthasintha, komanso moyo wabwino wa anthu omwe ali ndi matenda a Parkinson.
- Landirani ukadaulo wosinthika: Zida zothandizira ndi matekinoloje amatha kupititsa patsogolo kudziyimira pawokha ndikuwongolera ntchito zatsiku ndi tsiku kwa anthu omwe ali ndi matenda a Parkinson.
Chakumapeto kwa ulendo wa Carl ndi matenda a Parkinson, adalowa m'chipatala chachipatala ndipo kenako anamwalira mwamtendere pa June 18, 2017, ali ndi zaka 88. Pazovuta zake zonse, Carl anayamba kulimba mtima chifukwa cha nkhondo yake ya tsiku ndi tsiku yolimbana ndi matenda a Parkinson. Kupambana kwakung'ono kulikonse, kaya kupanga kapu ya khofi mwachipambano kapena kuwaza batala pa tositi, kunayimira kupambana pamavuto.
Pamene tikulingalira za ulendo wa Carl ndi zovuta zomwe anakumana nazo, tiyeni tidzipereke kudziwitsa anthu ndi kulimbikitsa chifundo kwa omwe ali ndi matenda a Parkinson. Nkhani yake ikhale ngati chikumbutso cha kulimba mtima ndi mphamvu, ngakhale mukukumana ndi zovuta kwambiri. Tiyeni tikhale ogwirizana poyesetsa kuthandiza ndi kulimbikitsa omwe akhudzidwa ndi matenda a Parkinson.
magwero
mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055