Januware ndi Mwezi Wodziwitsa za Tracheoesophageal Fistula/Esophageal Atresia (TEF/EA)
Mphuno ndi chubu chomwe chimagwirizanitsa khosi ndi mimba. The trachea ndi chubu chomwe chimagwirizanitsa khosi ndi mphepo ndi mapapo. Kumayambiriro koyambirira, amayamba ngati chubu limodzi lomwe nthawi zambiri limagawanika kukhala machubu awiri (pafupifupi masabata anayi kapena asanu ndi atatu pambuyo pa kutenga pakati) omwe amayendera limodzi pakhosi. Ngati izi sizichitika molondola, TEF/EA ndiye zotsatira zake.
Ndiye, kodi tracheoesophageal fistula/esophageal atresia ndi chiyani kwenikweni?
Tracheoesophageal fistula (TEF) ndi pamene pali kugwirizana pakati pa mmero ndi trachea. TEF nthawi zambiri imachitika limodzi ndi esophageal atresia (EA) zomwe zikutanthauza kuti mmero supanga bwino panthawi yomwe ali ndi pakati. TEF/EA imapezeka mwa 1 mwa 3,000 mpaka 5,000 obadwa. Zimapezeka zokha pafupifupi 40% ya omwe akhudzidwa, ndipo nthawi zina zimachitika ndi zilema zina zobadwa kapena ngati gawo la chibadwa cha matenda. TEF/EA ndiyoyika pachiwopsezo ndipo imafuna opaleshoni kuti akonze zolakwikazo.
Mpaka Novembala 2019, ndinali ndisanamvepo za TEF / EA ndipo mpaka nthawi imeneyo ndili ndi pakati, masabata 32, ndinali ndi malingaliro akuti ndili ndi pakati pathanzi (mwana wanga Henry anabadwa 11/2015). Ndikajambula kwa milungu 32, OB-GYN wanga adandipeza kuti ndili ndi polyhydramnios, yomwe ndi kuchuluka kwa amniotic madzi m'mimba (anakhala akuyang'anira kuchuluka kwamadzi kwanga kuyambira pazaka 30), ndipo ndinali mwamsanga anatchula katswiri. Kuphatikiza pa kuchuluka kwamadzimadzi, kuwira kwa m'mimba mwa mwana wanga wamkazi kumawoneka kocheperako kuposa momwe amachitira pajambulidwe. TEF/EA sangadziwike mwalamulo asanabadwe koma chifukwa cha kuchuluka kwanga kwa amniotic fluid komanso kuwira kwamimba pang'ono, panali umboni wokwanira wosonyeza kuti izi zitha kukhala choncho. Pakati pa kusankhidwa kwa akatswiri, kusamutsa chisamaliro changa kuchokera kwa OB-GYN wodalirika kupita ku gulu la madokotala pachipatala chatsopano, ndikukambirana za zochitika zabwino kwambiri komanso zoipitsitsa ndi matenda otsimikiziridwa a TEF / EA ndikukumana ndi dokotala wodziwika padziko lonse yemwe adapanga. opaleshoni yopulumutsa moyo mwana wanga mphamvu Ndinali ndi magawo ofanana ndikulira lingaliro lobweretsa kunyumba mwana wathanzi (tsiku lomwe amayembekezera linali Januware 2, 2020) ndikuyesera kukhalabe ndi chiyembekezo - chifukwa matendawa sanatsimikizike ndipo atha kukhalabe wathanzi.
Kuti ndichepetse nkhawa zanga, tidakonzekera kuphunzitsidwa koyenera pamasabata a 38 kuti tipewe tchuthi cha Khrisimasi ndi Chaka Chatsopano kuonetsetsa kuti dokotala yemwe ndimafuna kumupanga TEF / EA anali patchuthi osati patchuthi. Kodi izi zikuti chiyani za mapulani abwino kwambiri? Komabe, Romy Louise Ottrix adalowa mdziko lapansi milungu isanu koyambirira kwa Novembara 29, 2019 - tsiku lotsatira Thanksgiving - tchuthi china, kutanthauza kuti dotolo wathu wosankhidwa pamanja yemwe timamukhulupirira sadzakhalapo kuti amuchite opaleshoni. Pambuyo pa mphindi zochepa za khungu ku khungu, madokotala adathamangitsa Romy kuti aikepo pamtunda wake - TEF / EA yake inatsimikiziridwa pomwepo m'chipinda choperekera - mimba yake inali thumba laling'ono, lakuya masentimita angapo. Pambuyo pake, X-ray pachifuwa adatsimikizira kuti anali ndi kulumikizana kuchokera ku trachea kupita kumimba.
Anakonza zoti achite m'maŵa wotsatira, ndipo anam'chitira opaleshoni ya maola atatu, yomwe inatha maola opitirira sikisi. Pambuyo pa opaleshoni, tinakamuona m’chipinda cha odwala mwakayakaya (NICU) kumene anagonekedwa kwa masiku asanu ndi aŵiri otsatira, ndipo sitinathe kumusuntha kapena kumugwira. Anali aatali kwambiri masiku asanu ndi awiri a moyo wanga. Kuchokera kumeneko, tinali ndi ulendo wautali kuti tipeze nyumba yathu yokoma ya Romy. Madokotala adapeza fistula ina pakati pa mmero wake ndi trachea - yomwe pambuyo pake idatiuza kuti idagawana khoma la cell - kupangitsa fistula kukhala yowopsa. Fistula iyi inapangitsa kuti zikhale zovuta kuti azidyetsedwa pakamwa. Kuti apite kunyumba mwamsanga, madokotala anamuika chubu (g-tube) kuti abweretse chakudya ndi madzi m'mimba mwake. Kwa miyezi 18 yotsatira, ndinadyetsa Romy kanayi kapena kasanu patsiku kudzera mu g-chubu yake. Monga momwe mungaganizire, izi zinali zowononga nthawi komanso chifukwa chake, kudzipatula. Pambuyo pa njira zisanu ndi ziwiri zotsekera fistula yobadwa nayo, tinapatsidwa ufulu wodyetsa Romy pakamwa. Iye wakhala akukonzekera nthawi yotayika, kuyesa chirichonse ndi chirichonse chomwe chimayikidwa patsogolo pake .
Tangochita chikondwerero chazaka ziwiri za Romy kuchokera ku NICU, komwe adakhala milungu isanu ndi itatu. Masiku ano, ndi mwana wathanzi, wotukuka wazaka ziwiri yemwe ali pamlingo wa 71 pa kulemera kwake komanso kutalika kwa 98 - kupitilira zomwe adotolo amayembekeza omwe adachenjeza kuti "alephere kuchita bwino" kapena yemwe nthawi zonse amakhala wocheperako. . Mpaka pano, wachitidwapo maopaleshoni oposa 10 ndipo mwachionekere adzafunika maopaleshoni ena akamakula. Ndizofala kuti makanda a TEF/EA amatsikira kummero wawo pamalo okonzerako, zomwe zimafuna kuti chakudya chisatseke.
Nanga n’cifukwa ciani tiyenela kucenjeza anthu? Chifukwa anthu ambiri sanamvepo za TEF / EA, pokhapokha mutadziwa wina yemwe adakumanapo nazo; mosiyana ndi zilema zina zambiri zobadwa, palibe chithandizo chochuluka. Chifukwa chake sichikudziwikabe, pakali pano akukhulupirira kuti amayamba chifukwa cha kuphatikizika kwa majini ndi chilengedwe. Makanda ambiri omwe ali ndi TEF/EA amakumana ndi zovuta zambiri pakapita nthawi yayitali atachitidwa maopaleshoni, ndipo ena m'moyo wawo wonse. Izi zikuphatikizapo acid reflux, floppy esophagus, kulephera kuchita bwino, chifuwa chachikulu, kupuma movutikira, kukhumba mwakachetechete, pakati pa zinthu zina zambiri.
Tanthauzo la TEF/EA ndi ziwerengero zochokera ku:
https://medlineplus.gov/genetics/condition/esophageal-atresia-tracheoesophageal-fistula/