Kukhala ndi Matenda a shuga a Type 1

Pamene mwezi wa November umakhala mwezi wodziwitsa anthu za matenda a shuga, ndimadzipeza ndikulingalira za ulendo umene ndakhala ndikukhala ndi matenda a shuga a Type 1 kwa zaka 45 zapitazi. Nditapezeka koyamba ndili ndi zaka 7, kuthana ndi matenda a shuga kunali kovuta kwambiri kuposa masiku ano. Kwa zaka zambiri, kupita patsogolo kwaukadaulo, chidziwitso cha matendawa ndi chithandizo chabwinoko zasintha moyo wanga.

Nditalandira chithandizo changa cha matenda a shuga a Type 1 mu 1978, momwe kasamalidwe ka matenda a shuga amathandizira zinali zosiyana kwambiri ndi zomwe tili nazo masiku ano. Kuwunika shuga wamagazi sikunali kanthu, kotero kuyang'ana mkodzo ndi njira yokhayo yodziwira pomwe mwayima. Kuphatikiza apo, kubaya jakisoni imodzi kapena iwiri patsiku ndi insulin yocheperako komanso yokhalitsa inali njira yomwe imapangitsa kuti munthu azifunika kudya nthawi yeniyeni yomwe insulin idakwera komanso kukhala ndi shuga wambiri komanso wotsika kwambiri. Panthawiyo, moyo watsiku ndi tsiku wa munthu wodwala matenda a shuga nthawi zambiri umakhala wophimbidwa ndi njira zamantha zomwe akatswiri a zaumoyo amagwiritsa ntchito pofuna kuonetsetsa kuti akutsatira. Ndimakumbukira bwino za nthawi yoyamba yomwe ndinagonekedwa m’chipatala nditangopezeka kumene ndipo namwino wina anapempha makolo anga kuti atuluke m’chipindamo pamene ankandinyoza chifukwa chosadzibaya ndekha jakisoni wa insulin. Kumbukirani kuti ndinali ndi zaka zisanu ndi ziwiri ndipo ndinali m'chipatala kwa masiku atatu pamene ndikuyesera kumvetsa zomwe zinkandichitikira. Ndimakumbukira akunena kuti, “Kodi ukufuna kukhala mtolo kwa makolo ako kosatha?” M'misozi, ndinadzilimbitsa mtima kuti ndidzibaya ndekha koma ndikayang'ana m'mbuyo, ndikukhulupirira kuti ndemanga yake yolemetsa makolo anga inakhala nane kwa zaka zambiri. Panthawiyo, ena ankangofuna kupeŵa mavuto mwa kudziletsa, zomwe nthawi zambiri zinkandichititsa kuda nkhawa komanso kudziimba mlandu ngati sindinkachita zinthu “mwangwiro,” zimene zinali zosatheka pa nthawiyo. Kuchuluka kwa shuga m'magazi kumatanthauza kuti ndinali "woyipa" muubongo wanga wazaka zisanu ndi ziwiri komanso "osachita ntchito yabwino."

Kukhala wachinyamata wokhala ndi matenda a shuga a Type 1 kumapeto kwa zaka za m'ma 70 ndi 80 kunali kovuta kwambiri. Unyamata ndi nthawi yachipanduko komanso kufunafuna ufulu wodzilamulira, zomwe zimatsutsana ndi ndondomeko yokhwima yomwe ikuyembekezeka kuyendetsa matenda a shuga popanda teknoloji yamakono yomwe ilipo lero. Nthawi zambiri ndinkadziona ngati mlendo, chifukwa anzanga ankandithandiza koma sankagwirizana ndi vuto la tsiku ndi tsiku la kuyang'anira kuchuluka kwa shuga m'magazi, kumwa mankhwala a insulin, komanso kuthana ndi kusinthasintha kwa maganizo ndi mphamvu. Monga ngati achinyamata sali odzaza ndi kuchuluka kwa mahomoni omwe amachititsa kusinthasintha kwakukulu kwa malingaliro, kudzidalira, ndi kusatetezeka, kukhala ndi matenda a shuga kumawonjezera mbali ina yatsopano. Kusalidwa ndi kusamvetsetsana kozungulira matendawa kunangowonjezera mtolo wamalingaliro omwe achinyamata odwala matenda a shuga amanyamula. Ndinapitirizabe kukana thanzi langa m’zaka zaunyamata zimenezo, ndikuchita zonse zomwe ndikanatha “kungokhala pansi” ndi “kukwanira.” Ndinachita zinthu zambiri zomwe zinali zosemphana kwambiri ndi zomwe "ndimayenera" kuchita kuti ndisamalire thanzi langa, zomwe ndikutsimikiza kuti zinapitiriza kuwonjezera kudziimba mlandu ndi manyazi. Ndimakumbukiranso kuti patapita zaka zingapo mayi anga anandiuza kuti “ankaopa” kundilola kuchoka panyumba koma ankadziwa kuti anafunika kutero kuti ndikule ngati wachinyamata “wachibadwa”. Popeza tsopano ndine kholo, ndimamvera chisoni kwambiri mmene zimenezi ziyenera kuti zinalili zovuta kwa iye, ndipo ndikuthokozanso kuti anandipatsa ufulu umene ndinaufuna mosasamala kanthu za nkhaŵa yaikulu ya thanzi langa ndi chisungiko.

Zonsezi zinasintha m'zaka zanga za m'ma 20 pamene ndinaganiza zoyamba kuchitapo kanthu kuti ndisamalire thanzi langa popeza ndinali munthu wamkulu. Ndinapangana ndi dokotala m’tauni yakwathu yatsopano ndipo ndikukumbukirabe mpaka lero nkhaŵa imene ndinali nayo nditakhala m’chipinda chodikirira. Ndinali kunjenjemera ndi kupsinjika maganizo ndi mantha kuti nayenso, adziimba mlandu ndi kundichititsa manyazi ndikundiuza zoipa zonse zomwe zikanandichitikira ngati sindidzadzisamalira bwino. Mozizwitsa, Dr. Paul Speckart anali dokotala woyamba kundipeza kumene ndinali pamene ndinamuuza kuti ndabwera kudzamuona kuti ndiyambe kudzisamalira bwino. Iye anati, “Chabwino…tiyeni tichite izo!” ndipo sindinatchule zomwe ndinali nazo kapena zomwe sindinachite m'mbuyomu. Pokhala pachiwopsezo chokhala wovuta kwambiri, dotolo uja adasintha moyo wanga…Ndimakhulupirira zimenezo. Chifukwa cha iye, ndinatha kuyenda m’zaka makumi angapo zotsatira, ndikuphunzira kusiya kudziimba mlandu ndi manyazi zimene ndinagwirizana nazo posamalira thanzi langa ndipo pomalizira pake ndinatha kubweretsa ana atatu athanzi padziko lapansi, ngakhale kuti ndinali nditabadwa. kuuzidwa ndi akatswiri azachipatala koyambirira kuti ana sangakhale zotheka kwa ine.

Kwa zaka zambiri, ndaona kupita patsogolo kochititsa chidwi pa kasamalidwe ka matenda a shuga komwe kwasintha moyo wanga. Masiku ano, ndili ndi zida ndi zida zosiyanasiyana zomwe zimapangitsa moyo watsiku ndi tsiku kukhala wowongolera. Zina mwazofunikira zazikulu ndi izi:

1. Kuwunika kwa Glucose wamagazi: Ma Continuous Glucose Monitors (CGMs) asintha kasamalidwe kanga ka shuga. Amapereka deta yeniyeni, kuchepetsa kufunikira kwa mayesero a zala pafupipafupi.
2. Mapampu a insulin: Zidazi zalowa m'malo mwa ine jakisoni watsiku ndi tsiku, zomwe zimandipatsa chiwongolero cholondola pakuperekera insulin.
3. Mapangidwe abwino a insulini: + Mapangidwe amakono a insulin amayamba mwachangu komanso nthawi yayitali, kutengera momwe thupi limayankhira mozama kwambiri.
4. Maphunziro a Diabetes ndi Chithandizo: Kumvetsetsa bwino zamaganizidwe a kasamalidwe ka matenda a shuga kwapangitsa kuti pakhale chisamaliro chaumoyo komanso maukonde othandizira.

Kwa ine, kukhala ndi matenda a shuga a Type 1 kwa zaka 45 wakhala ulendo wopirira, ndipo kunena zoona, zandipanga kukhala momwe ndiliri, kotero sindikanasintha mfundo yakuti ndakhala ndi matenda aakulu. Anandipeza m’nthaŵi ya chithandizo chamankhwala chochitidwa mwamantha ndi umisiri wochepa. Komabe, kupita patsogolo kwa kasamalidwe ka matenda a shuga kwakhala kodabwitsa, kundilola kukhala ndi moyo wokhutiritsa popanda zovuta zazikulu mpaka pano. Chisamaliro cha matenda a shuga chasintha kuchokera ku njira yokhazikika, yozikidwa pamantha kupita ku yokhazikika, yokhazikika pa odwala. Ndine woyamikira chifukwa cha kupita patsogolo komwe kwapangitsa moyo wanga kukhala ndi matenda a shuga kuti ukhale wodalirika komanso wodalirika. M’mwezi uno wodziwitsa anthu za matenda a shuga, sindimakondwerera mphamvu zanga zokha komanso kutsimikiza mtima kwanga komanso gulu la anthu omwe adagawana nane ulendowu.

Ndikuyembekezera tsogolo labwino la kasamalidwe ka matenda a shuga. Pamodzi, titha kudziwitsa anthu, kuyendetsa patsogolo, ndipo, mwachiyembekezo, kutibweretsa pafupi ndi chithandizo cha matendawa chomwe chimakhudza miyoyo ya anthu ambiri.