Kurarama NeChirwere Chekutanga Cheshuga

Sezvo Mbudzi achicherekedza Mwedzi weKuzivisa nezveChirwere cheshuga, ndinoona ndichifunga nezverwendo rwandakatora ndichigara nechirwere cheshuga cheType 1 kwemakore makumi mana nemashanu apfuura. Pandakatanga kuongororwa pazera 45, kubata chirwere cheshuga kwaive chinetso chakasiyana chaizvo nezvachiri nhasi. Nekufamba kwemakore, kufambira mberi mune tekinoroji, ruzivo rwechirwere uye rutsigiro rwuri nani zvakashandura hupenyu hwangu.

Pandakagamuchira chirwere changu chechirwere cheshuga cheType 1 muna 1978, mamiriro ehutano hwechirwere cheshuga akanga akasiyana zvakanyanya nezvatinazvo nhasi. Ropa glucose monitoring yanga isiri kana chinhu, saka kutarisa weti yako ndiyo chete nzira yekuziva pawakamira. Kupfuurirazve, kubaya pfuti imwe chete kusvika kuviri pazuva ne insulin-yakareba uye yakareba-inobata insulin yaive regimen, iyo yakaita kuti ugare uchida kudya panguva chaiyo iyo insulin yakakwira uye inogara ichikwira uye yakaderera yeropa shuga. Panguva iyoyo, hupenyu hwezuva nezuva hweumwe munhu ane chirwere cheshuga hwaiwanzovharwa nekutya mazano akashandiswa nevashandi vehutano kuti vave nechokwadi chekuteerera. Ndine ndangariro yakajeka yokugara kwangu muchipatara kwokutanga pandakanga ndichangobva kubatwa uye mumwe mukoti achikumbira vabereki vangu kuti vabude mukamuri apo iye akapfuurira kundinyomba nokuda kwokusakwanisa kuzvibaya jekiseni reinsulin pachangu. Ramba uchifunga kuti ndaiva nemakore manomwe uye ndakanga ndava muchipatara kwemazuva matatu sezvandaiedza kunzwisisa zvakanga zvichiitika kwandiri. Ndinoyeuka achiti, “Unoda kuva mutoro pavabereki vako nokusingaperi here?” Nemisodzi, ndakakoka ushingi hwokuzvibaya jekiseni rangu ndimene asi ndichitarira shure, ndinotenda tsinhiro yake pamusoro pokuremedza vabereki vangu yakaramba iri kwandiri kwemakore. Chinangwa chevamwe panguva iyoyo chaiva chokudzivisa matambudziko kuburikidza nokudzora zvakasimba, izvo zvaiwanzoita kuti ndizvidye mwoyo uye ndiine mhosva kana ndakanga ndisingaiti nguva dzose zvinhu “zvakakwana,” izvo zvaisakwanisika panguva iyoyo. Nhamba yakakwirira yeshuga yangu yeropa yaireva kuti ndaive "akaipa" muuropi hwangu hwemakore manomwe uye ndisiri "kuita basa rakanaka."

Kuve wechidiki ane Type 1 chirwere cheshuga mukupera kwema'70s uye '80s kwainyanya kunetsa. Kuyaruka inguva yechimurenga uye kutsvaga rusununguko, izvo zvinopokana nehurongwa hwakasimba hunotarisirwa kubata chirwere cheshuga pasina tekinoroji yemazuva ano iripo nhasi. Ndaiwanzonzwa somutorwa, sezvo vezera rangu vainditsigira asi vaisagona kuwirirana nenhamburiko yezuva nezuva yokunzvera mwero weshuga yomuropa, kutora majekiseni e<em>insulin, uye kubata nokuchinja-chinja kwezvinyamusi uye mwero wesimba. Sokunge kuti pwere hadzina kuzara nokuwanda kwema<em>hormone achikonzera kuchinja kukuru kwezvinyamusi, kuzvidzora, uye kusachengeteka zvakadaro, kuva nechirwere cheshuga kwakawedzera chimiro chitsva chose. Kushorwa uye kusanzwisisa kwakapoteredza hosha yacho kwakangowedzera mutoro wepfungwa unotakurwa nevechiri kuyaruka vane chirwere cheshuga. Ndakaramba ndichiri mukuramba nezvehutano hwangu mukati memakore iwayo okuyaruka, ndichiita zvose zvandaigona kuti ndingo "kudzika" uye "kukwana." Ndakaita zvinhu zvakawanda zvaipesana chaizvo nezvandaifanira kunge ndichiita kuti ndichengetedze hutano hwangu, izvo zvandine chokwadi kuti zvakaramba zvichiwedzera kumanzwiro ekuzvipa mhosva uye kunyadziswa. Ndinoyeukawo amai vangu vachindiudza makore akati gare gare kuti “vaitya” kundirega ndichibuda pamba asi vaiziva kuti vaifanira kudaro kana ndaizokura sowechiduku “wenguva dzose”. Zvino zvandava mubereki, ndinonzwira urombo zvikuru kuti ikoku kunofanira kuva kwakanga kwakamuomera sei, uye ndinoongawo kuti akandipa rusununguko rwandaida pasinei zvapo neitiro hanya huru nokuda kwoutano hwangu nekotsekano.

Zvose izvi zvakashanduka mumakore angu makumi maviri pandakazofunga kutora nzira yakanyanyisa yekugadzirisa hutano hwangu zvino ini ndakanga ndakura. Ndakaronga kuonana nachiremba mutaundi rokumusha kwangu idzva uye ndichiri kuyeuka nanhasi kunetseka kwandaiita ndakagara muimba yokumirira. Ndainge ndave kubvunda nestress nekutya kuti naiyewo aitozozvipa mhosva nekundinyadzisa ondiudza zvese zvakaipa zvaizoitika kwandiri kana ndikasazvichengeta zviri nani. Sechishamiso, Dr. Paul Speckart ndiye chiremba wekutanga kusangana neni chaipo pandakanga ndiri pandakavaudza kuti ndakanga ndauya kuzovaona kuti nditange kuzvitarisira zviri nani. Akati, "Zvakanaka ... ngatizviite!" uye handina kana kumbotaura zvandaive nazvo kana zvandanga ndisina kuita kare. Panjodzi yekunyanya kushamisa, chiremba iyeye akachinja mararamiro angu…Ndinonyatsozvitenda. Nekuda kwake, ndakakwanisa kufamba mumakumi emakumi emakore akatevera, ndichidzidza kurega mhosva uye kunyadziswa kwandakanga ndabatanidza nekutarisira hutano hwangu uye ndakazokwanisa kuunza vana vatatu vane hutano munyika, kunyangwe ndakave. ndakaudzwa nenyanzvi dzezvokurapa pakutanga kuti vana vangave vasingakwanisi kwandiri.

Kwemakore apfuura, ndakaona kufambira mberi kunoshamisa mukugadzirisa chirwere cheshuga kwakashandura hupenyu hwangu. Nhasi, ndave nekuwana maturusi akasiyana-siyana uye zviwanikwa zvinoita kuti hupenyu hwezuva nezuva hugadzirike. Zvimwe zvakakosha zvekusimudzira zvinosanganisira:

1. Ropa Glucose Monitoring: Continuous Glucose Monitors (CGMs) yakashandura manejimendi angu echirwere cheshuga. Ivo vanopa data-chaiyo-nguva, kuderedza kudiwa kwekuwanzoitwa zvigunwe bvunzo.
2. Insulin Pombi: Zvishandiso izvi zvakatsiva majekiseni akawanda ezuva nezuva kwandiri, zvichipa kutonga chaiko pamusoro pekuunza insulin.
3. Kuvandudza Insulin Formulations: Magadzirirwo emazuva ano e insulin ane kukurumidza kutanga uye kureba kwenguva, achitevedzera maitiro emuviri emuviri insulin zvakanyanya.
4. Dzidzo yeDiabetes uye Tsigiro: Kunzwisisa zviri nani zvepfungwa dzehugashi manejimendi zvakakonzera kunzwira tsitsi maitiro ekuchengetedza hutano uye kutsigira network.

Kwandiri, kurarama nechirwere cheshuga cheType 1 kwemakore makumi mana nemashanu kwave rwendo rwekusimba, uye kutaura chokwadi, zvakandiita zvandiri, saka handingashandure chokwadi chekuti ndakararama nechirwere ichi chisingaperi. Ndakaonekwa munguva yekutya-kwakavakirwa hutano hwehutano uye hushoma tekinoroji. Zvisinei, kufambira mberi mukugadzirisa chirwere cheshuga kwave kunoshamisa, zvichiita kuti ndirarame hupenyu hunogutsa pasina matambudziko makuru kusvika nhasi. Chirwere cheshuga chakabva panzira yakaoma, yekutya kusvika kune yakazara, inotariswa nemurwere. Ndinotenda nekufambira mberi kwakaita kuti hupenyu hwangu nechirwere cheshuga huve nyore uye huve netariro. Mumwedzi uno weKuzivisa nezveChirwere cheshuga, handipembereri simba rangu chete uye kutsunga kwangu asiwo nharaunda yevanhu vakaita rwendo urwu neni.

Ndinotarisira ramangwana rinovimbisa rekugadzirisa chirwere cheshuga. Pamwe chete, tinogona kusimudzira ruzivo, kufambisa kufambira mberi, uye, netariro, kutiswededza pedyo nemushonga wechirwere ichi chinokanganisa hupenyu hwakawanda.