INyanga yoKwazisa nge-Alzheimer

Wonke umntu ubonakala emazi umntu omaziyo umntu one-Alzheimer's diagnostic. Uxilongo sesinye sezifo ezininzi ezijikeleza kwinqanaba lokwazisa kwethu. Njengomhlaza, okanye isifo seswekile, okanye i-COVID-19, into esiyaziyo ngokwesayensi ayisoloko icacile okanye ithuthuzela. Ngethamsanqa kumntu onoxilongo, inxalenye yokhuseleko njengoko ingqondo ilahlekelwa "i-oomph" (igama lesayensi) kukuba umntu ofunyenweyo akaziqondi kakuhle iintsilelo okanye ilahleko yakhe. Ngokuqinisekileyo akunjalo njengabantu ababangqongileyo.

Ndibe ngumkhathaleli katata wabantwana bam xa wafunyaniswa ukuba ngoJanyuwari ka-2021. Ayifani nokuba besingakhange sikrokrele iminyaka embalwa, kodwa oko kubangelwe “kukuguga”. Xa befunyaniswa ngokusemthethweni, abantwana, ngoku abasele bekhulile ngeminyaka abakwiminyaka yabo engamashumi amathathu, beza "bengaxutywanga" (elinye igama lobuchwephesha behlabathi eliphuma phantsi kwabo). Nangona siqhawule umtshato ngaphezu kweminyaka elishumi elinesibini, ndiye ndavolontiya ukuba ndithathele ingqalelo imiba yokhathalelo lwempilo yoxilongo ukuze abantwana baxabise kwaye banandiphe ubudlelwane babo notata wabo. “Ufanele ubathande abantwana bakho ngaphezu kokuba ungamthandi iqabane lakho langaphambili.” Ngaphandle koko, ndisebenza kukhathalelo lwempilo, ke kufuneka ndiyazi into, akunjalo? Akulunganga!

Kwi-2020, i-26% yabanakekeli base-US babenokunyamekela umntu onesifo sengqondo okanye i-Alzheimer's, ukusuka kwi-22% kwi-2015. Ngaphezu kwekota ye-American caregiers yeentsapho bathi banobunzima bokulungelelanisa ukunakekelwa. Amashumi amane anesihlanu epesenti yabanonopheli namhlanje bathi bahlupheke ubuncinci (negative) yempembelelo yezemali. Ngo-2020, iipesenti ezingama-23 zabanonopheli baseMelika bathi ukukhathalelwa kuye kwenza impilo yabo ibe mandundu. Amashumi amathandathu ananye ekhulwini abantu abanyamekela intsapho namhlanje basebenza eminye imisebenzi. (Yonke idatha evela aarp.org/caregivers). Ndifundile ukuba i-Alzheimer's Association kunye ne-AARP zizixhobo ezibalaseleyo, ukuba unolwazi olwaneleyo lokubuza imibuzo efanelekileyo.

Kodwa, oku akukho malunga nayo nayiphi na loo nto! Ngokucacileyo, ukukhathalela okanye kufanele ukuba yimeko yakho yempilo. Isenzo sokhathalelo singummiselo wentlalo yoluntu kumnakekeli, kunye nommkeli wokunyamekela, njengawo nawaphi na amayeza okanye ukungenelela ngokomzimba. Ulungelelwaniso kunye neendawo zokuhlala ezifunekayo ukubonelela ngokhathalelo olusemgangathweni azifumaneki, okanye zixhaswa ngemali, okanye zithathwa njengenxalenye yenxaki. Yaye ukuba bekungengobanyamekeli bentsapho, bekuya kwenzeka ntoni?

Kwaye esona sithintelo sabakhi ngababoneleli bezonyango kunye neenkqubo ezixhaswa ngemali ukuba zincede abantu baphile ngokukhuselekileyo kwindawo ezimeleyo. Mandinike amathuba amabini kuphela apho kufuneka utshintsho.

Okokuqala, umbutho wendawo othembekileyo uxhaswa ngemali ukubonelela ngabaphathi bokunyamekela abantu abadala abaneminyaka ethile. Ukufumana uncedo kufuna isicelo ekwafuneka ndisigcwalise kuba ukusebenzisa ikhompyutha akunakwenzeka ukuba utata womntwana. Ngenxa yokuba “umguli” engazange ayigcwalise ngokwakhe ifomu, i-arhente yafuna udliwano-ndlebe lobuqu. Iqela elibhekiswayo ngokubanzi lilahlekelwa yifowuni yakhe, aliyilayiti, kwaye liphendula kuphela iifowuni ezivela kwiinombolo ezaziwayo. Nangaphandle kwe-Alzheimer, lilungelo lakhe, akunjalo? Ke, ndiye ndamisela umnxeba ngexesha elimiselweyo kunye nosuku, ndilindele ukuba utata wabantwana alibale. Akukho nto yenzekileyo. Xa ndijonga imbali yefowuni yakhe, kwakungekho mnxeba ungenayo ngelo xesha, okanye kwangolo suku, okanye ngenene nanini na ukusuka kwinombolo enikiweyo. Ndibuyele kwisikwere sokuqala, kwaye ilungu lethu losapho ekucingelwa ukuba alinakusebenza lathi “kutheni ndingaphinda ndibathembe ngoku?” Le asiyonkonzo iluncedo!

Okwesibini, iiofisi zababoneleli azinalwazi ngeendawo zokuhlala ezifunekayo ukuze uphumelele. Kolu khathalelo, ugqirha uyakuxabisa ngokwenene ukuba ndimsa kwidinga, ngexesha nangemini efanelekileyo, kwaye ndilungelelanise zonke iimfuno zakhe zokhathalelo. Ukuba andikhange ndiyenze, ngaba bebeza kubonelela ngaloo nkonzo? Hayi! Kodwa, bandiqalisa ngokucwangcisiweyo ukufikelela kwirekhodi yakhe yonyango. Bathi, ngenxa yoxilongo, kucingelwa ukuba akanakukwazi ukumisela umntu okhathalelayo ixesha elingaphezu kwesinye ngexesha. Amakhulu eendleko zomthetho kamva, ndahlaziya i-Durable Medical Power of Attorney (Ingcebiso: bafundi, zithatheleni enye kunye nosapho lwakho, awusoze wazi!) iphepha kwi-FedEx) kumboneleli othe ekugqibeleni wavuma ukuba bafumene enye enomhla wokuqala, ebonisa ukuba babenayo yonke ixesha. Gxila, inceda njani le nto?

Ndinokongeza izahluko ezininzi malunga nokujongana neMicimbi yeVeterans (VA), kunye neenzuzo zokuhamba, kunye neenzuzo zekhemesti ze-intanethi. Kwaye oonontlalontle abanamazwi aneswekile e-mawkish xa bethetha nomntu kunye nokukwazi ukutshintshela kwimida engqongqo xa besithi "hayi." Kwaye ucalucalulo lwedesika yangaphambili kunye nabafowunelwa abathetha ngaye kunokuba bathethe naye luthoba isidima. Luhambo lwemihla ngemihla ekufuneka nje luxatyiswe usuku olunye ngexesha.

Ke, umyalezo wam kubantu abasebenza kwinkqubo yenkxaso, yezonyango okanye ngenye indlela, kukunikela ingqalelo kwinto oyithethayo nokubuzayo. Cinga ngendlela isicelo sakho esivakala ngayo kumntu ongenamandla okusebenza, okanye kumkhathaleli onexesha elilinganiselweyo. Hayi kuphela "ungenzi nto" kodwa yiba luncedo kwaye ube luncedo. Yithi “ewe” kuqala uze ubuze imibuzo kamva. Baphathe abanye ngendlela obuya kufuna ukuphathwa ngayo nawe, ngakumbi njengoko usiba ngumnonopheli kuba ngokwezibalo, loo ndima ikwikamva lakho nokuba uyakhetha okanye awukhethi.

Nakubaqulunqi bethu bomgaqo-nkqubo; masiqhubeke ngayo! Musa ukuqhubeka uqesha iinavigators ukuba zisebenze kwinkqubo eyaphukileyo; lungisa imaze entsonkothileyo! Ukuqinisa inkxaso yendawo yokusebenzela ukwandisa inkcazo yeFLMA ukubandakanya nabani na umkhathaleli omtyumbileyo. Ukwandisa inkxaso yemali kubakhathaleli (AARP kwakhona, umyinge weendleko zonyaka eziphuma epokothweni kubakhathaleli yi-7,242 yeedola). Fumana abakhathaleli abaqeqeshwe kakuhle emsebenzini ngemivuzo engcono. Lungisa iindlela zokuhamba kunye nengcebiso, ibhasi ayikhethi! Ukujongana nokungalingani okubangela ukungafani kwihlabathi elikhathalelayo. (Zonke izikhundla zomgaqo-nkqubo zincoma i-AARP).

Ngethamsanqa kusapho lwethu, utata womntwana usemoyeni olungileyo kwaye sonke sinokufumana uburharha kwiingxaki kunye neempazamo ezikhoyo. Ngaphandle koburharha, ukunyamekela kunzima ngokwenene, akuvuzi, kuyabiza kwaye kufuna. Ngedosi yesisa yoburharha, ungadlula kuyo yonke into.