INyanga yeSizwe yoKwazisa ngabaNikeli
Kwiminyaka emininzi edlulileyo, ndabhalisela ukuba ngumnikeli womongo. I Yiba ngumdlalo irejistri yayinedokodo kwisiganeko saseAsia American kunye nePasifiki Islander (AAPI) kuba babefuna abaxhasi abaninzi baseAsia. Ibiyi swab ekhawulezayo nelula esidleleni. Khange ndiyicinge enye into de kwafumaniseka ukuba uthando lwam uLupe une Non-Hodgkin lymphoma.
Ufakelo lwakhe lokuqala lomongo lwaluyi-autologous (umongo wethambo lakhe), kwaye waya ekuxolweni unyaka. Waphinda wahlaselwa yi-leukemia eyingozi. Wayefuna ukutshintshwa komongo wesibini, kwaye kuya kufuneka ukuba ibe yi-allogen (umongo wethambo lomxhasi). Ndandixhelekile, kodwa uLupe wayenethemba. Wayekholelwa ukuba kuya kuba lula ukufumana umxhasi ohambelanayo kwintsapho yakhe enkulu. U-Lupe wayengoyena mdala kubantwana abasixhenxe kunye notata wabantwana ababini, kodwa akukho namnye kubo owadibana ngokusondeleyo ngokwaneleyo ukuze afakelelwe ngokukhuselekileyo. Sixelelwe ukuba elona thuba lilungileyo lokufumana umdlalo liya kuba livela kuluntu lwase-Hispanic. Sothuswa kukuva ukuba abantu baseHispanics kunye nabanye abantu bebala babengamelwanga kakuhle kubhaliso lwabaxhasi.
Saqalisa ukubuza usapho nezihlobo ukuba zithini na ngokunikela ngomongo. Abanye babecinga ukuba kwakuya kufuna ukugrunjwa emathanjeni abo okanye into ebuhlungu ngendlela efanayo. Sifumene izizathu ezininzi zokunqongophala kweyantlukwano kwirejista, kubandakanywa neentsomi, iingcamango eziphosakeleyo, kunye namathuba amancinci okubhalisa. Ndabona ukuba ekuphela kwesizathu sokuba ndibe kwindawo yokubhalisa kukuba bazise ithuba lokubhiyozela inkcubeko. Mna noLupe sasebenza noBonfils (ngoku onguVitalant) ukuze sandise ulwazi ngemfuneko yabaxhasi abambalwa. Sabelana ngebali lethu, eliqhotyoshelwe apha ngezantsi, apho iBonfils isetyenziselwa imfundo kunye neziganeko zokunyusa imali. U-Lupe uzimase iidrives zabaxhasi kunye nonyuso lwengxowa-mali, lonke ixesha ephantsi konyango kuquka i-chemo. U-Lupe utyhale ukudinwa kunye nezinye iziphumo ebezingalindelekanga kuba wayekholelwa ukuba kuya kuthetha ngakumbi ebantwini ukuba badibana nomntu ofuna umxhasi. U-Lupe wakwazi ukufumana umxhasi kwaye oko kwasinika omnye unyaka wokuphila kunye. Kunokuba nzima ukwabelana ngebali lakhe, kodwa kufanelekile ukuba umntu omnye abhalise ukuba abe ngumxhasi.
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