Zubar da Haske: Sanin Cutar Cutar Parkinson
Yayin da rana ta safiya ke tace labulen, wata rana ta fara. Koyaya, ga waɗanda ke zaune tare da cutar Parkinson, ayyuka mafi sauƙi na iya zama ƙalubale masu ban tsoro, saboda kowane motsi yana buƙatar haɗin kai da himma. Farkawa ga gaskiyar raguwar motsi abin tunawa ne mai ban tausayi na yaƙe-yaƙe na yau da kullun da ke gaba. Ayyukan da ba a taɓa yin ƙoƙari ba na tashi daga gado yanzu yana buƙatar kama abubuwa na kusa don tallafi, shaida mara shiru ga yanayin ci gaba na cutar Parkinson.
Tare da girgiza hannaye da ma'auni mara kyau, har ma da al'adar safiya na shan kofi yana canzawa zuwa wani abu mai wuyar gaske. Kamshin kamshin kofi mai daɗi ya lulluɓe shi da takaicin zubewar ruwa mai yawa a kan tebur fiye da cikin kofin jira. Zama yayi don jin daɗin wannan sib ɗin na farko, yanayin zafi ya kasa gamsuwa, ya sa ya koma kicin don dumama kofi a cikin microwave. Kowane mataki yana jin kamar aiki, amma sha'awar ɗan lokaci na dumi da jin dadi yana ci gaba, duk da cikas. Sha'awar yin tafiya mai sauƙi ga kofi yana kaiwa ga yanke shawarar yin burodin gurasa. Abin da ya kasance wani aiki na yau da kullun yanzu yana buɗewa azaman jerin ƙalubale, daga gwagwarmayar saka burodin a cikin abin toaster zuwa fama da wuka don yada man shanu akan gasasshen yanki. Kowane motsi yana gwada haƙuri da juriya, yayin da rawar jiki ke barazanar lalata har ma da manyan ayyuka.
Wannan al'ada ta safiya ta zama ruwan dare gama gari ga mutane da yawa masu fama da cutar Parkinson, kamar kakan marigayi, Carl Siberski, wanda ya fuskanci mummunan yanayin wannan yanayin. Shekaru da yawa, ya yi nazarin ƙalubalen da cutar Parkinson ta gabatar, yana ba da haske game da gwagwarmayar yau da kullun na waɗanda ke fama da wannan mawuyacin yanayi. Duk da yaɗuwarta, har yanzu akwai ƙarancin fahimtar cutar Parkinson. Don girmama tafiyar Carl da sauran marasa adadi da cutar ta Parkinson ta shafa, an ayyana Afrilu a matsayin Watan Fadakarwar Cutar Parkinson. Wannan watan yana da mahimmanci yayin da ake bikin haihuwar James Parkinson, wanda ya fara gano alamun cutar ta Parkinson sama da shekaru 200 da suka gabata.
Fahimtar Cutar Parkinson
Don haka, menene ainihin cutar Parkinson? Cutar Parkinson cuta ce ta jijiya wacce ke yin tasiri sosai ga kowane bangare na rayuwar mutum. A ainihinsa, yanayin ci gaba ne wanda ke nuna raguwar ƙwayoyin jijiya a hankali a cikin kwakwalwa, musamman waɗanda ke da alhakin samar da dopamine. Wannan neurotransmitter yana taka muhimmiyar rawa wajen sauƙaƙe motsin tsoka mai santsi, daidaitacce. Koyaya, yayin da matakan dopamine ke raguwa saboda raunin sel ko mutuwa, alamun cutar Parkinson suna ci gaba, kama daga rawar jiki, taurin kai, da rushewa cikin daidaituwa da daidaitawa.
Alamomin Cutar Parkinson
Alamun sun bambanta daga mutum zuwa mutum kuma suna iya bayyana a hankali a kan lokaci. Dangane da mutum ɗaya, yana iya zama ƙalubale don bambance ko alamun suna da alaƙa da cutar Parkinson ko kuma kawai ga tsufa. Ga Carl, gwagwarmayarsa da cutar Parkinson ya zama sananne a cikin manyan shekarunsa, wanda ya jagoranci waɗanda ba su da yawa a kusa da shi su ɗauka cewa rashin iyawarsa ne kawai don ci gaba da rayuwa. Koyaya, ga mutane da yawa, gami da danginsa, abin takaici ne ganin yanayin rayuwarsa yana raguwa a hankali.
Carl ya sadaukar da yawancin rayuwarsa don tafiye-tafiye da motsa jiki. A lokacin da ya yi ritaya, ya shiga tafiye-tafiye daban-daban na kasa da kasa kuma ya zama mai sha’awar safarar jiragen ruwa, bayan da ya sha safarar jiragen ruwa kusan 40 a rayuwarsa. Kafin balaguron balaguron sa na tafiye-tafiye, ya shafe shekaru da yawa yana koyar da aji na 4 yayin da yake renon yara shida tare da matarsa, Norita. Sanannen salon rayuwar sa, Carl ya halarci tseren gudun fanfalaki da yawa, yana gudu kowace rana, ya ƙwace duk wata dama don yawo, ya kula da lambun mafi girma a unguwar, kuma ya sanya ayyukan inganta gida ya zama kamar ba su da wahala. Da zarar an san shi da yin hawan keken tandem, dole ne ya yi ritaya daga wannan aikin yayin da cutar Parkinson ta fara shafar motsinsa. Ayyukan da suka taɓa kawo masa farin ciki mai kyau-kamar aikin lambu, zane-zane, yawo, gudu, da raye-raye-raye-raye-sun zama abin tunawa maimakon ayyukan yau da kullun.
Duk da rayuwar jajircewar Carl, cutar Parkinson ba ta da bambanci. Abin takaici, ba za a iya warkewa ko hana shi ba. Yayin da salon rayuwar Carl ya kasance sananne, hakan bai sa shi yin rigakafi daga cutar ba. Cutar Parkinson na iya shafar kowa, komai matakin aikinsa.
Wasu alamun cutar Parkinson na yau da kullun sun haɗa da:
- Girgizawa: Girgizawa ba da gangan ba, yawanci farawa daga hannaye ko yatsu.
- Bradykinesia: Rage motsi da wahalar fara motsi na son rai.
- Ƙunƙarar ƙwayar tsoka: Ƙarfafawa a cikin gaɓoɓi ko gangar jikin na iya haifar da ciwo da rashin ƙarfi na motsi.
- Rashin kwanciyar hankali na baya: Wahalar kiyaye daidaito, yana haifar da faɗuwa akai-akai.
- Bradyphrenia: Rashin hankali kamar asarar ƙwaƙwalwar ajiya, wahalar maida hankali, da canje-canjen yanayi.
- Matsalolin magana da hadiyewa: Canje-canje a yanayin magana da matsalar hadiyewa.
Matsalolin magana da haɗiye sune mafi ƙalubalanci bayyanar cututtuka, suna tasiri sosai ga Carl. Cin abinci, ɗaya daga cikin abubuwan farin ciki mafi girma a rayuwa, yana zama abin bakin ciki lokacin da mutum ba zai iya ba da komai ba. Matsalolin magana da haɗiye suna haifar da ƙalubale a yaƙi da cutar Parkinson, haifar da shinge ga sadarwa da ingantaccen abinci mai gina jiki. Carl ya kasance a faɗake kuma ya shiga tattaunawa a cikin shekarunsa na ƙarshe duk da haka ya yi ƙoƙari ya bayyana tunaninsa. A lokacin godiyarsa ta ƙarshe, danginmu suka zauna a kusa da tebur, kuma tsammanin ya haskaka a idanun Carl yayin da yake nuna sha'awar zuwa ga doki-roƙen da ya yi shiru don mu ji daɗin daɗin dafa abinci ba zai iya ƙara jin daɗi ba.
Yin fama da Cutar Parkinson
Duk da yake cutar Parkinson ba shakka tana shafar ingancin rayuwa, ko kaɗan ba ta nuna alamar ƙarshen rayuwa da kanta ba. Maimakon haka, yana buƙatar gyare-gyare don ci gaba da rayuwa cikakke. Ga Carl, dogara ga tsarin tallafinsa ya zama mahimmanci, kuma ya yi sa'a ya sami babban cibiya a cikin al'ummarsa inda yake hulɗa da takwarorinsa akai-akai. Bangaren zamantakewa ya kasance mai matukar mahimmanci a gare shi don ci gaba, musamman idan aka yi la'akari da cewa abokansa da yawa kuma suna fuskantar matsaloli game da lafiyarsu, yana ba su damar tallafawa juna ta hanyar gogewa.
Baya ga hanyar sadarwar zamantakewa, Carl ya sami kwanciyar hankali a cikin bangaskiyarsa. A matsayinsa na ƙwararren Katolika, halartar taro na yau da kullun a cocin St. Rita ya ba shi ƙarfi na ruhaniya. Yayin da ya zama dole a ware abubuwan sha'awa na zahiri, halartar coci ya kasance wani ɓangare na ayyukansa na yau da kullun. Dangantakarsa da limamin cocin ya ƙara ƙarfi, musamman a cikin shekarunsa na ƙarshe, yayin da firist ɗin ya ba da ja-gora ta ruhaniya, yana gudanar da Sacrament na Shafawa Marasa lafiya da kuma jagorantar taron jana'izar Carl. Ƙarfin addu'a da addini sun kasance muhimmiyar hanyar jurewa ga Carl kuma hakanan zai iya amfanar da wasu da ke fuskantar irin wannan ƙalubale.
Bayan bangaskiya, goyon bayan iyali ya taka muhimmiyar rawa a tafiyar Carl. A matsayinsa na uba shida kuma kakan sha takwas, Carl ya dogara ga danginsa don taimako, musamman game da matsalolin motsi. Duk da yake abokantaka suna da mahimmanci, tallafin iyali yana da mahimmanci daidai, musamman lokacin da ake tsara tsarin kula da ƙarshen rayuwa da yanke shawara.
Samun dama ga kwararrun kiwon lafiya yana da mahimmanci. Kwarewarsu ta jagoranci Carl ta hanyar hadaddun cutar Parkinson. Wannan yana nuna mahimmancin ɗaukar hoto na kiwon lafiya, kamar Medicare, wanda ke taimakawa wajen rage nauyin kuɗi da ke tattare da kulawar likita. Wannan yana da mahimmanci musamman ga membobin Colorado Access, waɗanda ƙila suna fuskantar irin wannan yanayi, kuma yana sanyawa cikin hangen nesa dalilin da yasa yake da mahimmanci a gare mu mu ci gaba da ba da Medicaid.
Baya ga waɗannan ginshiƙan tallafi, wasu dabarun jurewa na iya taimakawa mutanen da ke fama da cutar Parkinson, gami da:
- Ilimi: Fahimtar cutar da alamunta yana ba wa mutane damar yanke shawara mai zurfi game da jiyya da daidaita rayuwar su.
- Kasance mai aiki (idan zai yiwu): Shiga cikin motsa jiki wanda aka keɓance da iyawa da abubuwan da ake so, saboda motsa jiki na iya taimakawa wajen haɓaka motsi, yanayi, da ingancin rayuwa gabaɗaya ga mutanen da ke fama da cutar Parkinson.
- Rungumar fasahohin daidaitawa: Na'urori masu taimako da fasaha na iya haɓaka 'yancin kai da sauƙaƙe ayyukan yau da kullun ga mutane masu cutar Parkinson.
A ƙarshen tafiyar Carl tare da cutar Parkinson, ya shiga magani na asibiti kuma daga baya ya mutu cikin lumana a ranar 18 ga Yuni, 2017, yana da shekaru 88. A cikin gwagwarmayarsa, Carl ya sami juriya daga yaƙin da yake yi na yau da kullum da cutar Parkinson. Kowace ƙaramar nasara, ko nasarar yin kofi na kofi ko kuma yada man shanu a kan gurasa, yana wakiltar nasara a kan wahala.
Yayin da muke tunani game da tafiyar Carl da ƙalubalen da ya fuskanta, bari mu himmatu wajen wayar da kan jama'a da haɓaka tausayawa ga waɗanda ke fama da cutar Parkinson. Bari labarinsa ya zama abin tunatarwa na juriya da ƙarfi, har ma da fuskantar ƙalubale masu ban tsoro. Bari mu tsaya tare a ƙoƙarinmu na tallafawa da ɗaga waɗanda cutar Parkinson ta shafa.
Sources
mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055