Gajiya da rashin fahimta

Na kasance a kulawa ta farko shekaru da dama.

Kusan duk wanda ya kasance mai ba da kulawa na farko (PCP) ya san akwai ƙungiyar marasa lafiya da muka gani waɗanda ke fama da gajiya, gajiya, kuma a zahiri suna jin rashin ƙarfi wanda ba mu iya samun takamaiman dalili. Za mu saurara, mu yi jarrabawa a hankali, mu ba da umarnin aikin jini da ya dace, kuma mu koma ga ƙwararru don ƙarin haske kuma har yanzu ba mu da cikakkiyar fahimta game da abin da ke faruwa.

Abin takaici, wasu masu ba da sabis za su kori waɗannan marasa lafiya. Idan ba za su iya fallasa wasu abubuwan da ba na al'ada ba akan jarrabawa, aikin jini, ko wasu, za a jarabce su su rage alamun su ko lakafta su a matsayin malinging ko samun "la'o'i" na tunani.

An haifar da yanayi da yawa a matsayin dalilai masu yiwuwa a cikin shekaru. Na isa in tuna da “yuppie mura.” Sauran alamomin da aka yi amfani da su sun haɗa da mura na yau da kullun, fibromyalgia, Epstein-Barr na yau da kullun, ƙarancin abinci iri-iri, da sauransu.

Yanzu, wani yanayi yana bayyana wasu jeri da waɗannan sharuɗɗan; “kyauta” na annoba ta kwanan nan. Ina nufin dogon COVID-19, dogon haulers, post-COVID-19, na kullum COVID-19, ko post-m sequelae na SARS-CoV-2 (PASC). An yi amfani da duka.

Alamun rashin jin daɗi ciki har da gajiya suna bin nau'ikan cututtuka iri-iri. Waɗannan cututtukan gajiya na “bayan kamuwa da cuta” suna kama da abin da ake kira myalgic encephalitis/na kullum gajiya ciwo (ME/CFS). Yawancin lokaci, wannan yanayin da kansa yakan biyo bayan rashin lafiya mai kama da cututtuka.

Bayan m COVID-19, ko ana asibiti ko a'a, yawancin marasa lafiya suna ci gaba da fuskantar tawaya da alamu tsawon watanni da yawa. Wasu daga cikin waɗannan "masu dogon-tsawo" na iya samun alamun bayyanar da ke nuna lalacewar gabobi. Wannan zai iya haɗawa da zuciya, huhu, ko kwakwalwa. Sauran masu doguwar tafiya suna jin rashin lafiya duk da cewa ba su da wata kwakkwarar shaidar lalacewar gabobin. A zahiri, marasa lafiya waɗanda ke jin rashin lafiya har yanzu bayan watanni shida bayan faɗuwar COVID-19 suna ba da rahoton yawancin alamomi iri ɗaya kamar ME/CFS. Za mu iya ganin ninka yawan mutanen da ke da waɗannan alamun bayan cutar. Abin takaici, kamar sauran mutane, da yawa suna ba da rahoton korarsu daga kwararrun kiwon lafiya.

Myalgic encephalomyelitis/ciwon gajiya na yau da kullun yana shafar tsakanin Amurkawa miliyan 836,000 zuwa miliyan 2.5 na kowane zamani, kabilanci, jinsi, da asalin zamantakewa. Yawancin ba a gano su ba ko kuma ba a gano su ba. Wasu ƙungiyoyin suna fama da rashin daidaituwa:

• Mata suna fuskantar matsala sau uku fiye da na maza.
• Yawan farawa yana faruwa tsakanin shekaru 10 zuwa 19 da 30 zuwa 39. Matsakaicin shekarun farawa shine 33.
• Baƙar fata da Latinxs na iya shafar su a mafi girma kuma tare da tsananin tsanani fiye da sauran ƙungiyoyi. Ba mu sani ba daidai tun lokacin da aka rasa bayanai a cikin mutane masu launi.

Yayin da shekarun majiyyaci a ganewar asali shine bimodal, tare da mafi girma a cikin shekarun samartaka da kuma wani kololuwa a cikin 30s, amma an bayyana yanayin a cikin mutane daga shekaru 2 zuwa 77.

Yawancin likitocin ba su da ilimin da za su iya tantance ko sarrafa ME/CFS daidai. Abin takaici, jagorar asibiti ba ta da yawa, ta ƙare, ko mai yuwuwar cutarwa. Saboda haka, tara daga cikin 10 marasa lafiya a Amurka sun kasance ba a gano su ba, kuma waɗanda aka gano galibi suna samun maganin da bai dace ba. Kuma yanzu, saboda cutar ta COVID-19, waɗannan matsalolin suna ƙara yaɗuwa.

Cigaba?

Waɗannan majiyyatan yawanci suna fuskantar tabbataccen kamuwa da cuta ko kuma wanda ba takamaiman ba amma sun kasa murmurewa kamar yadda ake tsammani kuma suna ci gaba da rashin lafiya makonni zuwa watanni bayan haka.

Yin amfani da aikin motsa jiki da kuma maganganun tunani (musamman ma'anar halayyar halayyar) don magance gajiya da ke da alaka da ciwon daji, yanayin kumburi, yanayin neurologic, da fibromyalgia an yi amfani da su tsawon shekaru tare da sakamako mai kyau. Duk da haka, lokacin da aka bai wa yawan mutanen da ake zargi da ciwon ME/CFS iri ɗaya jiyya, sun ci gaba da yin muni, ba mafi kyau ba, tare da motsa jiki da aiki.

“Kwamitin kan Ma’auni na Ganewa don Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Ciwon Jiya; Hukumar Kula da Lafiyar Jama'a; Cibiyar Magunguna” ta kalli bayanan kuma ta fito da ma'auni. Su, a zahiri, sun yi kira da a sake fasalin wannan rashin lafiya. An buga wannan a cikin National Academies Press a cikin 2015. Kalubalen shine yawancin masu ba da kiwon lafiya ba su saba da waɗannan ka'idoji ba. Yanzu tare da karuwar marasa lafiya da suka kawo bayan COVID-19, sha'awar ta karu sosai. Ma'auni:

• Ragewa mai yawa ko rashin lafiya don shiga cikin matakan aiki, makaranta, ko ayyukan zamantakewa wanda ke daɗe fiye da watanni shida tare da gajiya, sau da yawa mai zurfi, wanda ba saboda motsa jiki ba kuma ba a inganta shi ta hanyar hutawa.
• Rashin lafiya bayan motsa jiki - wanda ke nufin bin aiki, akwai gagarumin gajiya ko asarar kuzari.
• Barci mara wartsake.
• Kuma akalla ko dai:
  • Rashin haƙuri na Orthostatic - tsayin tsayi yana sa waɗannan marasa lafiya su ji daɗi sosai.
  • Rashin hankali - kawai rashin iya tunani a fili.

(Masu lafiya yakamata su sami waɗannan alamun aƙalla rabin lokacin mai laushi, matsakaici, ko mai tsanani.)

• Mutane da yawa tare da ME/CFS kuma suna da wasu alamun bayyanar. Ƙarin alamun gama gari sun haɗa da:
  • Muscle zafi
  • Ciwo a cikin gidajen abinci ba tare da kumburi ko ja ba
  • Ciwon kai na sabon nau'i, tsari, ko tsanani
  • Kumburi ko taushi nodes na lymph a wuya ko hammata
  • Ciwon makogwaro mai yawan gaske ko maimaituwa
  • sanyi da gumin dare
  • Tashin hankali na gani
  • Hankali ga haske da sauti
  • Tashin zuciya
  • Allergies ko hankali ga abinci, wari, sinadarai, ko magunguna

Ko da bayan ganewar asali, marasa lafiya suna kokawa don samun kulawar da ta dace kuma sau da yawa an ba da umarnin jiyya, irin su farfadowa-halayyar dabi'a (CBT) da kuma aikin motsa jiki (GET), wanda zai iya tsananta yanayin su.

Marubucin da ya fi sayar da New York Times Meghan O'Rourke kwanan nan ya rubuta littafi mai suna "Mulkin Ganuwa: Maimaita Rashin Lafiya." Bayanin rubutu daga mawallafin ya gabatar da batun kamar haka:

“Cutar cututtukan da ba ta daɗe ba ta addabi dubun-dubatar Amurkawa: waɗannan cututtuka ne waɗanda ba a fahimta sosai, akai-akai, kuma suna iya zuwa ba a gano su ba kuma ba a gane su gaba ɗaya. Marubucin ya ba da wani bincike mai ban sha'awa game da wannan nau'in rashin lafiya na "marasa ganuwa" wanda ya ƙunshi cututtukan autoimmune, cututtukan cutar Lyme bayan jiyya, da kuma dogon lokaci COVID, yana haɗa na sirri da na duniya don taimaka mana duka ta wannan sabuwar iyaka."

A ƙarshe, an yi nazari da yawa waɗanda ke ba da shawarar kalmar “ciwon gajiya na yau da kullun” yana shafar tunanin marasa lafiya game da rashin lafiyarsu da kuma halayen wasu, gami da ma’aikatan lafiya, ’yan uwa, da abokan aiki. Wannan lakabin zai iya rage girman girman irin wannan yanayin ga waɗanda ke fama. Kwamitin IOM ya ba da shawarar sabon suna don maye gurbin ME/CFS: Cutar rashin haƙuri na tsarin (SEID).

Sunan wannan yanayin SEID a zahiri zai nuna ainihin fasalin wannan cuta. Wato, yin aiki na kowane nau'i (na zahiri, fahimi, ko na tunani) - na iya cutar da marasa lafiya ta hanyoyi da yawa.

Aikace-Aikace

aafp.org/pubs/afp/issues/2023/0700/fatigue-adults.html#afp20230700p58-b19

mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

"Mulkin da Ba a Ganuwa: Ciwon Ciwon Jiki" Meghan O'Rourke