Ukuphila Nohlobo Lokuqala Lwesifo sikashukela

Njengoba uNovemba eqopha Inyanga Yokuqwashisa Ngesifo Sikashukela, ngizithola ngizindla ngohambo engiluthathile ngesikhathi ngiphila nesifo sikashukela soHlobo loku-1 eminyakeni engama-45 edlule. Lapho ngitholwa okokuqala ngineminyaka engu-7 ubudala, ukuphatha isifo sikashukela kwakuyinselele ehluke kakhulu kunanamuhla. Phakathi neminyaka edlule, intuthuko kwezobuchwepheshe, ulwazi lwalesi sifo nokusekelwa okungcono kuye kwashintsha ukuphila kwami.

Lapho ngithola ukuxilongwa kwami ​​kwesifo sikashukela soHlobo loku-1 ngo-1978, isimo sokulawulwa kwesifo sikashukela sasihluke kakhulu kulokho esinakho namuhla. Ukuhlolwa kweglucose yegazi kwakungeyona ngisho into, ngakho ukuhlola umchamo wakho kwaba ukuphela kwendlela yokwazi ukuthi umi kuphi. Ngaphezu kwalokho, ukujova isibhamu esisodwa noma ezimbili kuphela ngosuku nge-insulin esebenza isikhathi esifushane nesebenza isikhathi eside kwakuwuhlobo lomuthi, olwenzela isidingo sokudla ngaso sonke isikhathi lapho i-insulin yanda ngayo kanye nokuba noshukela ophakeme nophansi wegazi. Ngaleso sikhathi, impilo yansuku zonke yomuntu onesifo sikashukela yayivame ukusibekela amaqhinga okwesaba asetshenziswa ochwepheshe bezempilo ukuze kuqinisekiswe ukuthotshelwa kwemithetho. Nginenkumbulo ecacile yokuhlala kwami ​​kokuqala esibhedlela lapho ngisanda kuxilongwa futhi umhlengikazi oyedwa ecela abazali bami ukuba baphume ekamelweni ngesikhathi eqhubeka nokungihleka ngokungakwazi ukuzijova mina ngokwami. Khumbula ukuthi ngangineminyaka eyisikhombisa futhi ngase ngisesibhedlela cishe izinsuku ezintathu njengoba ngangizama ukuqonda ukuthi kwenzekani kimi. Ngikhumbula ethi, “Ingabe ufuna ukuba umthwalo kubazali bakho kuze kube phakade?” Ngezinyembezi, ngaba nesibindi sokuzenzela owami umjovo kodwa uma ngibheka emuva, ngiyakholwa ukuthi ukuphawula kwakhe mayelana nokuthwalisa abazali bami kwahlala iminyaka kimi. Abanye ngaleso sikhathi babegxile ekugwemeni izinkinga ngokuzilawula ngokuqinile, okwakuvame ukungishiya ngikhathazekile futhi nginecala uma ngangingenzi njalo izinto “ngokuphelele,” okwakuyinto engenakwenzeka ngaleso sikhathi uma ubheka emuva. Inombolo ephezulu kashukela wami wegazi yayisho ukuthi “ngimubi” ebuchosheni bami obuneminyaka eyisikhombisa ubudala futhi “ngingawenzi umsebenzi omuhle.”

Ukuba yibhungu elinesifo sikashukela soHlobo loku-1 ngasekupheleni kweminyaka yawo-70s kanye nama-80s kwakunzima kakhulu. Isikhathi sobusha yisikhathi sokuhlubuka nokufuna ukuzimela, okungqubuzana nesimiso esiqinile okulindeleke ukuba silawule isifo sikashukela ngaphandle kwabo bonke ubuchwepheshe besimanje obukhona namuhla. Ngangivame ukuzizwa njengomuntu wangaphandle, njengoba ontanga yami babengeseka kodwa bengakwazi ukuhlobana nomshikashika wansuku zonke wokuqapha amazinga kashukela egazini, ukuthatha isibhamu se-insulin, nokubhekana nokushintshashintsha kwemizwelo namazinga amandla. Njengokungathi intsha ayigcwele ukutheleka kwama-hormone abangela ukushintshashintsha okukhulu kwemizwelo, ukuzesaba, nokungazethembi noma kunjalo, ukuba nesifo sikashukela kwenezela isici esisha. Ukucwaswa nokungaqondi okuzungeze lesi sifo kwenezela emthwalweni ongokomzwelo othwalwa intsha enesifo sikashukela. Ngaqhubeka nokuphika kancane ngempilo yami kuleyo minyaka yobusha, ngenza konke engangingakwenza ukuze “ngihlale phansi” futhi “ngingene.” Ngenza izinto eziningi ezazingqubuzana ngqo nalokho “obekufanele” ngikwenze ukuze ngilawule impilo yami, engiqinisekile ukuthi ngiqhubekile nokwengeza emizweni yecala namahloni. Ngikhumbula nomama wangitshela eminyakeni ethile kamuva ukuthi “wayesaba” ukungivumela ukuba ngiphume ekhaya kodwa wayazi ukuthi kwakufanele enze njalo ukuze ngikhule ngingomusha “ovamile”. Manje njengoba sengingumzali, nginozwela olukhulu ngendlela lokhu okumelwe ukuba kwakunzima ngayo kuye, futhi ngiyabonga nangokunginika inkululeko engangiyidinga naphezu kwalokho okumelwe ukuba kwakukhathazeke kakhulu ngempilo nokuphepha kwami.

Konke lokho kwashintsha eminyakeni yami yama-20 lapho ekugcineni ngithatha isinqumo sokuthatha indlela esheshayo yokuphatha impilo yami njengoba sengimdala. Ngenza i-aphoyintimenti nodokotela edolobheni lakithi elisha futhi ngisakhumbula kuze kube namuhla ukukhathazeka engangikuzwa ngihlezi endlini yokulinda. Ngangithuthumela ngokoqobo ngenxa yokucindezeleka nokwesaba ukuthi naye, wayezoba necala futhi angiphoxe futhi angitshele zonke izinto ezimbi ezizokwenzeka kimi uma ngingazinakekeli kangcono. Ngokuyisimangaliso, uDkt. Paul Speckart wayengudokotela wokuqala owangihlangabeza lapho ngangikhona lapho ngimtshela ukuthi ngize ukuzombona ukuze ngiqale ukuzinakekela kangcono. Wathi, “Kulungile…asikwenze!” futhi angizange ngisho nokuthi yini enganginayo noma engangingayenzanga esikhathini esidlule. Ngengozini yokuba nesimangaliso ngokweqile, lowo dokotela washintsha inkambo yokuphila kwami…Ngikukholelwa ngokugcwele lokho. Ngenxa yakhe, ngakwazi ukuzulazula phakathi namashumi eminyaka ambalwa alandelayo, ngafunda ukuyeka icala namahloni engangikuhlanganise nokunakekela impilo yami futhi ekugcineni ngakwazi ukuletha izingane ezintathu ezinempilo emhlabeni, nakuba ngitshelwe ochwepheshe bezokwelapha kusenesikhathi ukuthi izingane zingase zingabi yinto engenzeka kimi.

Eminyakeni edlule, ngiye ngabona intuthuko emangalisayo ekulawulweni kwesifo sikashukela esiguqule impilo yami. Namuhla, ngiyakwazi ukufinyelela kumathuluzi ahlukahlukene nezinsiza ezenza impilo yansuku zonke ilawuleke. Ezinye zentuthuko eziyinhloko zihlanganisa:

1. Ukuqapha I-Blood Glucose: I-Continuous Glucose Monitors (CGMs) iguqule indlela engiphatha ngayo isifo sikashukela. Banikeza idatha yesikhathi sangempela, enciphisa isidingo sokuhlolwa kweminwe kaningi.
2. Amaphampu we-insulin: Lawa madivaysi athathele indawo imijovo eminingi yansuku zonke kimina, enikeza ukulawula okunembile ekulethweni kwe-insulin.
3. Amafomula athuthukisiwe we-insulin: Ukwakhiwa kwe-insulin yesimanje kuqala ngokushesha nangesikhathi eside, kulingisa ukusabela kwe-insulin kwemvelo komzimba ngokuseduze.
4. Imfundo Nokwesekwa Kwesifo Sikashukela: Ukuqonda kangcono izici ezingokwengqondo zokulawulwa kwesifo sikashukela kuye kwaholela ezenzweni zokunakekelwa kwezempilo ezinozwela kanye namanethiwekhi okusekela.

Kimina, ukuphila nesifo sikashukela soHlobo loku-1 iminyaka engu-45 kube uhambo lokukhuthazela, futhi uma sikhuluma iqiniso, kungenze ngaba yilokho engiyikho, ngakho-ke ngeke ngikushintshe ukuthi ngiphile nalesi sifo esingelapheki. Ngatholakala enkathini yokunakekelwa kwezempilo okusekelwe ekwesabeni kanye nobuchwepheshe obulinganiselwe. Nokho, inqubekelaphambili ekulawuleni isifo sikashukela ibe yinto engavamile, ingivumele ukuba ngiphile ukuphila okwanelisayo ngaphandle kwezinkinga ezinkulu kuze kube manje. Ukunakekelwa kwesifo sikashukela kuye kwavela endleleni eqinile, esekwe ekwesabeni kwaya ekubeni egxile kakhulu esigulini. Ngibonga intuthuko eyenze impilo yami enesifo sikashukela yalawuleka futhi yaba nethemba. Kule Nyanga Yokuqwashisa Ngesifo Sikashukela, angigubhi kuphela amandla ami nokuzimisela kodwa nomphakathi wabantu abahlanganyele nami ngalolu hambo.

Ngibheke phambili ekusaseni elithembisayo lokulawulwa kwesifo sikashukela. Ngokubambisana, singaqwashisa abantu, siqhubekisele phambili inqubekelaphambili, futhi, ngethemba, sisisondeze ekwelapheni lesi sifo esithinta izimpilo eziningi.